Category Archives: Autism Crazy

Hello Autism! Welcome Home | Remembering My Son Is Autistic

Well it’s been to long friends! I can’t believe as I logged on to the blog I hadn’t posted in so long. Honestly last year was so autism friendly that things just coasted along. We had great teachers, great support, & things just worked. In my mind I thought ‘This is it! We’ve Crested!’ I think it has taken this long into the new school year to realize I had tricked myself. I have tricked myself & let others trick me into forgetting my son is autistic. I feel guilty even saying that because I know so many of you have lower functioning kids that you get none of those moments but none the less it’s how I feel at the moment. Don’t get me wrong we still have some great teachers but middle school is hard, impending high school is scary, & life is crazy. We started off with little missed assignments here & there then more didn’t make it home or were turned in half done. Grades fell, social interactions slumped, & I allowed myself to stay in blissful ‘normo town’. The other day I logged in to take a look at his grades to find them spinning downward so I reached out to the special needs staff asking them to take a look & give me some insight as communication about school is not our strong point to say the least. I asked for any missing assignments to be sent to me so we could work together to knock them out. What I got was a big black folder with around 20 front & back pages of work from multiple classes that he had not done. Lost on the way home, finished & lost before they got turned in, didn’t feel like doing them so he tossed them, you name it it has probably happened but it doesn’t really matter in the end.¬†I wasn’t as vigilant as I should have been this year so when it was left up to him to get signed up for Robotics club it didn’t happen. He disliked band because he just didn’t fit in & hated all the noise so we dropped that as well.

Now that my eyes are open I realize we have taken several steps backward. Its hard to see it when you’re not looking for it because he is just so happy and positive. Even when we had bully problems he was just positive all the time. When a kid is that content with himself and his life its hard to see problems as they arrive when your rose colored glasses are firmly attached to your face like mine have been.

Our little family has had a rough go the last month or so. Between our car that we owe an obscene amount of money on breaking down & the fight that ensued with the warranty company who considers it a total loss leaving us on the hook for the $$ to a burglary at our home while we slept in the house things have been better. All that being said I had a realization over the last several days that my priorities are out of whack! I’ve been focusing on the problems, the worries, & the un-controllables instead of whats important. Yesterday it rained all 15310971_10211505165128874_2138217549_oday long & we stayed home. We made holiday cookies, watched pete’s dragon, & played video games. It was one of the best days I’ve had in so long. I realized that while I had my rose colored glasses on it was super easy not to see the problems but I also didn’t see some of the good things that were peeking through that I used to foster. He loves making comic books & then he puts them for sale in his ‘Store’ in his room where you can buy them for a couple of dollars so he can earn money. A couple of years ago I would have jumped on that & sent it off to blurb to be printed professionally so he could see his idea come to life but instead I just said ‘Thats awesome buddy’ & moved on with my day. I’m not trying to throw a pity party here… well maybe a little bit but hey, it’s my blog I get to do that… I’m just trying to say it out loud (okay, type it out loud) to help open my eyes and hold myself accountable. I need to be a better husband, a better father, a better special needs advocate, & even a better photographer as I realized I haven’t even been photographing my own kids. I walk in from a work shoot and put down the camera only to let it sit there until I am ready to work again. I guess its just time for re focusing on the things that matter. So this is one of those things. This blog helps me hold myself accountable. It helps me get feedback from other parents who know what the hell I’m talking about. It helps me tell horrible off color jokes that other parents cringe at but other special needs parents belly laugh at because they’ve been in the same shoes. Today is a new day.

 

Side Note: I thought I would share a few photos of our little moments & adventures since I last updated. Thanks for reading my ramblings! ūüôā

Halloween 2016 was a blast

Halloween 2016 was a blast

Zion was electrocuted, Jayden was murdered, & Deano was Slappy from Goosebumps

Zion was electrocuted, Jayden was murdered, & Deano was Slappy from Goosebumps

Proving our kids are just as big nerds as we are this is a pic from our election night party!

Proving our kids are just as big nerds as we are this is a pic from our election night party!

We had a day on a party bus...with a stripper pole...okay maybe I should have skipped this one as a highlight

We had a day on a party bus…with a stripper pole…okay maybe I should have skipped this one as a highlight

Thanksgiving was fun, gluttonous but fun

Thanksgiving was fun, gluttonous but fun

Our elf on the shelf came back & since we have a new cat our youngest one had to give the elf a warning

Our elf on the shelf came back & since we have a new cat our youngest one had to give the elf a warning

 

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Light It Up Blue? Where’s The Matches?

It’s world autism day, better known as Thursday or alternatively everyday! I love awareness & we do everything we can to spread it so why is it that when the world in at your door step saying “Lets all be aware of autism!” do I go into “Bit*h, I can’t BE any more aware!” mode? No, I don’t get rude or mean, you have to talk about it when people want to talk about it because otherwise it will NOT get talked about. On the other hand you have to be careful because for us living the autism awareness that everyone else spends 24 hours celebrating it’s hard not to be jaded that it will all be over in a week or so when the next world whatever day comes along.

That sounds way more jaded than I mean it but you get me right? I vent but at the same time I do want to talk to every person that strikes up a conversation about what I think about a cure for autism or what do I think about vaccinations. Yes, I do want to read the article you posted on my facebook wall about parenting tips that will help solve my problems. It’s cool, I WANT to talk about it & it’s only after all these years I’m realizing that I don’t just have a kid with autism, I have a duty to all kids with autism to educate my community, my family, & anyone else I have access to.¬†(that’s you by the way)¬†Even if the opinions differ or I’m having a crappy day or I’m just all autism’d out that day I still have a duty to educate & make people aware because someday my kid will be grown. The more accepting people are, the more aware people are, & the more prepared they are to come across someone a little different that all makes sure he has a chance. So yeah, light it up blue today? Pass me the matches & I’ll light this world on fire with big blue flames!¬†(metaphorically¬†speaking only, put down the phone! No need to call the¬†authorities! Its way¬†harder to spread awareness when your on a no fly list!)

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Cheese Cake On A Stick at our favorite food truck park

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Slick new haircuts! These faces are the story of my freakin’ life!

 

@bleugarten with the kids yesterday. The look on his face is the best!

A video posted by Canned Ham Photos (@cannedhamphotos) on

Jenny McCarthy’s Tears Cure Autism! {The Shocking Story Revealed!}

I’m not one for confrontation, I will eat an under or over cooked steak that I’m given, you can make a crappy comment about my tattoo’s or my RayBans & I’m not going to call you out most of the time but¬† I’ve been reading so much about the AutismOne/Generation Rescue¬†Conference that I couldn’t help but post my disdain for the whole thing.
Okay Jenny McCarthy, you & your years of medical knowledge can tell me all about how vaccines cause autism but when you give a platform to a bunch of other quacks that are even crazier than you are, well that’s just uncalled for!¬†I mean really, I hope I’m not being to harsh but I didn’t know Playboy University handed out degrees in parenting &¬†medicine. This guy isn’t going to go into all the crazy that was packed into the AutismOne Conference but I will say that MAN there is sure a lot of crazy going on in these people’s heads!
This brings me to the point of my blog today:

Oh AutismOne, Generation Rescue, & Jenny McCarthy how I loathe thee. Let me count the ways!

  • Miracle Mineral Supplement (Bleach Enemas For Autism)
  • Two truck loads of PR about how you know how low income families feel & then charge $250 to come & have a cocktail with you.
  • ‘Classes’ & ‘Presentations’ by people like Ol’ Doc Wakefield & a plethora of other quacks peddling everything under the sun to parents for a buck!
  • In multiple interviews you say after diagnosis you said you didn’t like what the Dr said so you went home & Googled Autism, found Generation Rescue(one of the first pages you looked at), & learned from their site/”Doctors” that other Doctors were bad & didn’t care! So you took over the organization & pumped money into it to make it the well oiled Bull Sh*t Factory it is today!

I’m stopping myself for your sake! I leave you with this, when it all boils down to brass tacks & all the money, fame, networking with Dr. I Got My License In A Cracker Jack Box…after all of that when you look at it all I see is this: